My background: I first started to see articles on PCOS in 2001. Three things in the profile popped out at me: Irregular menses, weight gain, and hirsuitism (excess hair, usually on the face). My PCP discounted my concerns because my labs weren't definitive. When I asked for an ultrasound, she said it would be a lot of work to get my insurance to pay for it, and I didn't really need one.
I ended up moving back "home" and returning to my old PCP. I asked for a referral to a Reproductive Endocrinologist. When he asked me why, I began explaining PCOS to him. I was about halfway through my symptoms when he stopped me and had his PA write the referral.
When I went to the RE, I began explaining my symptoms to him. I wanted to show him my "beard" but it had gotten too itchy and I shaved it a day previous. He listened carefully, and then confirmed that yes, I did have PCOS. I asked him if I needed an ultrasound to confirm the diagnosis. He said "No, you have it". I explained to him that my last Dr didn't think so. He said "Look, you have the hirsuitism, you have the abdomen fat, you have the amenorrhea, you have the weight gain... PCOS is a syndrome. It has many symptoms, but you don't have to have all of them to have the syndrome". I told him that I wanted an ultrasound, and he said okay, but he didn't think I needed it.
Thank god, he agreed to the ultrasound. He already planned to give me Lupron, which is designed to stop all androgen (sex hormone) production, for 3 months. But the ultrasound revealed a tennis-ball sized cyst in my left ovary. After being treated with Lupron, (for just one month) the cyst remained, and that meant he needed to remove it. Laproscopic surgery saved 2/3 of my left ovary from being destroyed by the tennis-ball cyst.
With many rounds of fertility treatment, I have two beautiful daughters. The recommendation for treatment remains as it was then: Weight loss, insulin sensitizing agents (glucophage/metformin), and possibly ovarian dormancy (via "the pill", "the patch" or "the ring") to preserve fertility.
I have been on various forms of metformin off and on. For me XR/ER works better than plain. Plain is cheaper, but very hard on the stomach. I can not do any form of hormonal birth control, something about the synthetic hormones makes me very emotionally unsettled. If I don't have my cycle every 3 months-ish, my GYN wants me to induce it. To do that I use a med called "Prometrium" which is a bioidentical form of progesterone synthesized from wild yams.
I am back on weight watchers for the first time in years. I tend to try to stay protein heavy/carb light and ignore my cravings. Carbs tend to send me into what I call the "blood sugar death spiral". Low blood sugar > eat carbs > Blood sugar spike > too much insulin triggered > blood sugar crash > crave carbs!
We're eight weeks into a ten week session of WW at work, and hoping for another round. I'm down 11 lbs and hoping to get to 16 by my cruise date of 5/31. I know, I am being optomistic.
So that's me, Jeannie. Any other "Cysters"?
Connor and Jeannie (Go Eagles, Flyers, Sixers, Wings, and Union!)