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sunshine252

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Posts posted by sunshine252

  1. On 5/21/2020 at 6:45 AM, deadmoney said:

    A GOOD PVP is a great asset.

    Mine is great, wish we were allowed to give their names.

    I wish we were, too! I have some things I would like a PVP for and I've looked up a couple on FB. Contacted one with no return communication. I may try the other one now. The regular reps I've talked to are nice, but sometimes not so informed on the more complicated things... LOL

  2. Yes, this is an old thread but it certainly is humorous! We're taking our 3 & 5 year olds on their first cruise in July & we have a balcony cabin. While we will instruct our little dears not to "peek", they're children - if they peek and get an eyeful, they will certainly not be scarred (or surprised, probably). Actually, they'll probably want to know why they can't go nekkid, too! I say go for it! :D

  3. Again, I apologize to the OP for hijacking this thread, and thank all of you that have posted. I'm especially happy to hear that there are medicines other than Pred. that seem to give good results. I've felt worse in the 4 days I've been on it than I have in a LONG time! I'm going to go search for that sunblock now... :)

  4. I have Lupus. I was diagnosed about 16 years ago. I will be turning 49 June 24th.

    Lupus is a funny thing. Everyone is different!!!:rolleyes:

     

    Mine was affecting my kidneys. They were functioning at 67% when they figured out what I had.

    I had horrible joint pain, swelled ankles and fingers (had to have my wedding ring cut off), a sun induced rash on my arms, very anemic.

     

    They immediately put me on Steroids, and I had to go through some low dose Chemo treatments to suppress my immune system. I also take Plaquenil.

     

    I have been on quite a few vacations since my diagnosis. I make sure I wear sunscreen. I'm not really supposed to be in the sun.

    I have never had a flare. I am lucky!!:D

     

    That's nice to hear. So far it's been all "Doom and Gloom" and I'm just not ready for that yet. LOL Thank you for sharing!

  5. Hello, Notwithoutabalcony. I apologize in advance for dredging up an old thread. :o I'm just curious as to how your cruise went? I've just been referred to a rheumatologist for what appears to be Lupus. Like you, I've been to the Lupus forums but I can't seem to relate to the people there... I guess I'm not far enough along? IDK... I'm just hoping that you can share some insight on your treatment and experience. I don't know if it's good or bad that I feel more connected to the people here than I do there.. LOL Thanks for any insight you can give! Again, sorry for the un-cruiserelated post!

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