Jump to content

topgallent

Members
  • Posts

    25
  • Joined

Posts posted by topgallent

  1. I am looking for accounts of people who once had or are prone to landsickness or MdDS post cruise (not sea sickness, people who are fine on the boat) and have had episodes of landsickness for 2-4 weeks after previous cruises who have successfully avoided recurrences by taking Clonazepam before during and after the cruise or Bonine (meclizine). I have noticed some people claiming taking Bonine (meclizine) has solved their landsickness problems even though they don't have seasickness and I'm keen to hear more about this.

     

    I had an episode of landsickness of MdDS once after a rocky 7 day cruise that lasted a little under a month and I'm researching ways to prevent this from happening again so I can keep cruising.

     

    If you have only had landsickness for 2-5 days that's considered normal and not really the demographic I am looking at. :)

     

    Also if you tried it and it didn't help that's also news.

  2. A few days technically isn't MdDS....

     

    http://www.tchain.com/otoneurology/disorders/central/mdd.html

     

    I think that if one has had it for several weeks once or is female with a history if migraines there is a risk, how great the risk I am not sure as the research isn't there. I have read some very sad stories, see

     

    http://www.etete.com/mdd/support.html

     

    for some of them about women who have gone on a cruise which changed their lives and led to permanent balance and vertigo issues and it didn't have anything to do with how rocky the sea was... I think since in my case I didn't respond to sea-sickness medication that some speak of... see "After the MDD has started, most medications that work for other forms of dizziness or motion sickness are ineffective. Specifically, antivert, bonine, meclizine, dramamine, scopolamine seem to be of little use. Valium and related medications such as Klonapin are helpful in some persons." then I really had a small milder form of MdDS. Some of the posts I have read on cruise critic of cruisers having gotten symptoms for months or years and then getting on another cruise seem highly risky to me... I am only considering what the situation is because it was weeks, just under a month, but even that has me taking serious pause and really not going... I am still looking for evidence to make me feel the risk isn't there... or not that badly there... other cruisers who have success stories... but I think the fact is, as some members on support groups for this balance disorder have said, it's a gamble and the losing end is possibly an incurable condition that will be a life-changing condition... if one had had an experience of MdDS before then as one of those support members put it.... perhaps the brain has identified itself as one of those that is within the risk group. Is that a risk I am willing to take for a two week cruise or for any cruise? It seems like a big gamble at the moment, and I'm heartbroken about it because I would really like to go and get a break from a very difficult year.

     

    Hopefully my response to my thread now prompts some more responses that I can weigh in. But if you knew that there was a chance that you were more likely than the average person to getting an incurable balance disorder that may not go away with time would you take that risk?? I have read stories of people who cruise fine several times and then a certain cruise does it, or cruise and get small episodes and then finally a big episode hits. It's definitely a reason to pause, I think.

  3. http://www.tchain.com/otoneurology/disorders/central/mdd.html

     

    I think that if one has had it for several weeks once or is female with a history if migraines there is a risk, how great the risk I am not sure as the research isn't there. I have read some very sad stories, see

     

    http://www.etete.com/mdd/support.html

     

    for some of them about women who have gone on a cruise which changed their lives and led to permanent balance and vertigo issues and it didn't have anything to do with how rocky the sea was... I think since in my case I didn't respond to sea-sickness medication that some speak of... see "After the MDD has started, most medications that work for other forms of dizziness or motion sickness are ineffective. Specifically, antivert, bonine, meclizine, dramamine, scopolamine seem to be of little use. Valium and related medications such as Klonapin are helpful in some persons." then I really had a small milder form of MdDS. Some of the posts I have read on cruise critic of cruisers having gotten symptoms for months or years and then getting on another cruise seem highly risky to me... I am only considering what the situation is because it was weeks, just under a month, but even that has me taking serious pause and really not going... I am still looking for evidence to make me feel the risk isn't there... or not that badly there... other cruisers who have success stories... but I think the fact is, as some members on support groups for this balance disorder have said, it's a gamble and the losing end is possibly an incurable condition that will be a life-changing condition... if one had had an experience of MdDS before then as one of those support members put it.... perhaps the brain has identified itself as one of those that is within the risk group. Is that a risk I am willing to take for a two week cruise or for any cruise? It seems like a big gamble at the moment, and I'm heartbroken about it because I would really like to go and get a break from a very difficult year.

     

    Hopefully my response to my thread now prompts some more responses that I can weigh in. But if you knew that there was a chance that you were more likely than the average person to getting an incurable balance disorder that may not go away with time would you take that risk?? I have read stories of people who cruise fine several times and then a certain cruise does it, or cruise and get small episodes and then finally a big episode hits. It's definitely a reason to pause, I think.

  4. Hello Everyone.

    I am a 33 year old female and several years ago in June July of 2007, I went on a week long cruise around the Hawaiian Islands. The last night was especially rocky and our cabin was near the front of the ship. After disembarking I experienced what I think was MdDS for several weeks, I believe it was just under a month's time, before the symptoms went away. If you are not familiar with what MdDS is, it's the sensation of being on the boat when you are on land that is usually only alleviated by movement in a car or boat (something like that) and for some can last years. There is no cure but many go into remission where they feel normal again. There is little research on it so there is no way of knowing if one is in the high risk group to have dizziness for a long time or just for a few weeks, as far as I have found. I have done some questioning among support groups for MdDS but their group is biased of course, towards encouraging me never to cruise again. Maybe this group, as a group of repeat cruisers, has a different point of view.

     

    So that you know it isn't MdDS if it's just a few days, or if it's relieved by typical drugs used for seasickness like Bonine. Specifically, antivert, bonine, meclizine, dramamine, scopolamine seem to be of little use. Valium and related medications such as Klonapin are helpful in some persons. If what you had responds to that it is not MdDS. Also, you would feel great on the boat but then sick after the boat...not both. MdDS will feel better if you're in a car or on another boat. You feel like you're still on the boat, basically.

     

    After that episode I did go on one overnight ferry and several small ferries over theyears but never had a recurrence.

     

    I have been invited on a 14 day cruise around the Mediterranean leaving on April21 of this year and I have been posting and sending emails looking forinformation on whether it is too risky for me to travel again.

     

    Questions I have been asking include: If you have MdDS did you have a smaller episode before the larger episode from which you currently suffer or do you always suffer episodic symptoms which pass? Do you prevent your symptoms with any means successfully? Do you think it matters how calm or rocky the sea is and was the cruise that affected you the on the Med at all? Do you think it's possible for someone to experience the symptoms once and never again, even if they do other cruising? Do you think it's too risky to endeavor to go on the cruise? Is it rare for episode to be long lasting or do typically the episodes remain short as

    mine did?

     

     

    Thanks so much and I hope these aren't too many questions. As it stands I'm leaning against going on the cruise but it's quite a shame as it would be a lovely experience if I remained well.

     

    btw this cruise critic account belongs to my father who loves to cruise.

  5. Hello Everyone.

    I am a 33 year old female and several years ago in June July of 2007, I went on a week long cruise around the Hawaiian Islands. The last night was especially rocky and our cabin was near the front of the ship. After disembarking I experienced what I think was MdDS for several weeks, I believe it was just under a month's time, before the symptoms went away. If you are not familiar with what MdDS is, it's the sensation of being on the boat when you are on land that is usually only alleviated by movement in a car or boat (something like that) and for some can last years. There is no cure but many go into remission where they feel normal again. There is little research on it so there is no way of knowing if one is in the high risk group to have dizziness for a long time or just for a few weeks, as far as I have found. I have done some questioning among support groups for MdDS but their group is biased of course, towards encouraging me never to cruise again. Maybe this group, as a group of repeat cruisers, has a different point of view.

     

    So that you know it isn't MdDS if it's just a few days, or if it's relieved by typical drugs used for seasickness like Bonine. Specifically, antivert, bonine, meclizine, dramamine, scopolamine seem to be of little use. Valium and related medications such as Klonapin are helpful in some persons. If what you had responds to that it is not MdDS. Also, you would feel great on the boat but then sick after the boat...not both. MdDS will feel better if you're in a car or on another boat. You feel like you're still on the boat, basically.

     

    After that episode I did go on one overnight ferry and several small ferries over theyears but never had a recurrence.

     

    I have been invited on a 14 day cruise around the Mediterranean leaving on April21 of this year and I have been posting and sending emails looking forinformation on whether it is too risky for me to travel again.

     

    Questions I have been asking include: If you have MdDS did you have a smaller episode before the larger episode from which you currently suffer or do you always suffer episodic symptoms which pass? Do you prevent your symptoms with any means successfully? Do you think it matters how calm or rocky the sea is and was the cruise that affected you the on the Med at all? Do you think it's possible for someone to experience the symptoms once and never again, even if they do other cruising? Do you think it's too risky to endeavor to go on the cruise? Is it rare for episode to be long lasting or do typically the episodes remain short as

    mine did?

     

     

    Thanks so much and I hope these aren't too many questions. As it stands I'm leaning against going on the cruise but it's quite a shame as it would be a lovely experience if I remained well.

     

    btw this cruise critic account belongs to my father who loves to cruise.

×
×
  • Create New...