Jump to content


  • Posts

  • Joined

About Me

  • Location
  • Interests
    Knitting, crochet, tablet weaving, coloured-pencil art.
  • Favorite Cruise Line(s)
    Princess. (Also, only cruise line so far.)
  • Favorite Cruise Destination Or Port of Call
    Australia, so far. I don't have a passport yet.

JVes's Achievements

Cool Cruiser

Cool Cruiser (2/15)

  1. It took me years to accept that yes, I need help. Maybe even decades. Even now, I hate it. I hate it so very very much that it's a constant scream in the back of my mind. I rage against my body, sometimes quite literally screaming into my pillow. Shadow, I'm glad you took the courage to post that. I don't have answers. All I can tell you is that it's normal to grieve your former freedom and what your body used to be able to do.
  2. You make an excellent point. And thank you - all of you have managed to explain not only that it's normal, but why. It was all terribly confusing to me, but I get it now.
  3. Thank you! Not all of us will find cruising a good match, sadly, but for me it's a way to put all my entertainment desires in one place. The only advice I have for someone where mobility is the main problem: try cruising in a smaller ship, and try to book far enough ahead to get an accessible cabin close to the central lifts. You mention that balance is a major problem: talk to your PT about walkers/rollators. I find them frustrating, mainly because when I'm physically okay I can move around more freely - I don't have the same turning circle & the like. BUT, mine has stopped me from falling many times. I'm a terrible falls risk. If you're happy with your PT, work with them. Do what you (reasonably) can, and give yourself small sub-goals so you get that nice 'I succeeded' emotional rush. I hope your next cruise is more successful!
  4. The specific port is Port Melbourne, in Australia. (Melbourne is on the south-east of the continent, having a staring match with Tasmania.) I was expecting something a lot more like an airport. But you're right, the airport has people stuck waiting for planes, and makes money off hosting shops and cafes. The cruise port just has to make sure we're not carrying contraband and get us onto the ship as efficiently as possible.
  5. Is it normal for a cruise terminal to look more like an empty warehouse than something enticing? We arrived from the taxi into what was basically a concrete shell, and the security screening stuff seemed to be something pulled out of a closet. It was difficult to find the disability area, too.
  6. I have a wobble board. My physio doesn't want me using it yet. You have a good point about the ship & balance.
  7. Question for this guy: how much stuff does a non-floating city of 10K people use/generate? Wow: probably about the same as the floating city of comparable size!
  8. I've talked to many people who want to come to Australia 'some day'. And for them, yes, the travel time is a deal breaker.
  9. I wish my body allowed me to do such things. I need to use a walker just to safely get around at home. I like small ships, for an obvious reason. As for the mega-ships, I don't think that Australia/NZ has the cruising population to support those.
  10. I used to live just off tram 96' route. I think it was that one. I no longer live on a tram route, and I miss it. It led past some lovely places, so sometimes I'd just ride the tram, get off on a whim. There was a great supermarket - independant so I never knew exactly what was in stock (other than the basics). I love the Melbourne trams. I really do. If you're looking for a city which has a wide variety of 'you never know what you'll find' shops, move to Melbourne and live close enough in that you're on a tram line.
  11. I just had a tooth break, and now extracted. I need a cruise.
  12. When I see it like that, I'll definitely give it a try. I'm not sure if it's in our mainstream supermarkets, but I'm sure a grocer or a farmer's market might have some. If I can find it, I'll buy one and hunt down a recipe.
  13. My brother is also severely ill: he's actually worse off than me, and his prognosis is bad. He came up with a plan for the rest of his life. He works on giving his wife and children good memories of him. They're the most important people in his life. He's also sharing life with our parents and with me, but (understandably) his kids and wife are his main focus. In my own life, my mantra is that every day, I teach something, learn something, and make someone smile. If I achieve that, it's been a good day. Since I took up that mantra, I have had 99% good days. The one day I didn't had a bad fall that took me from Emergency to Short Stay. I think that's a reasonable excuse! (PS: I now have balance excercises in my PT folder.) Having a way to decide whether or not a day has been successful helps me a lot. Consider making up one of your own!
  14. All I can imagine is that she was having a horrible day. But no, she had no right to talk to you like that. And thank you so much for asking first. That's extremely important. You did right. People behaving like that are the ones being rude. Unless clearly indicated otherwise, treat a disabled person as a normal one, except for the visible disability. When I'm using a walker, I take up more space on a footpath or in a hallway so I appreciate people making the space for me. But (as your daughter said) "there's nothing wrong with my brain". Those of us who have invisible disabilities have a problem unique to us (I think). We take a disability-only parking spot, put our tags on the dashboard, and get out of the car. Only to be abused (sometimes quite seriously) for 'pretending to be disabled'. Same with special seating in busses and trains. JJK and MareBlu Thank you so much for your kind words. And I know you both mean it, you're not 'just saying' that. You have no idea (maybe you do) how much it means to have that sort of kindness. I leave you with a phrase I cling to on bad days: I GET KNOCKED DOWN, BUT I GET UP AGAIN, Y'AIN'T NEVER GONNA KEEP ME DOWN!
  15. I have three choices, and the first two are unacceptable. Die. (Unacceptable.) Become so apathetic and lethargic that I have to get dumped into a nursing home or equivalent. (Also unacceptable.) FIGHT LIKE HELL and GET AS HEALTHY AS I CAN. (Very acceptable.) So yeah. Option 3. And I hope everyone reading this chooses option 3 if/when they get faced with these three choices. And help loved ones to choose, too. Make sure they choose it for themselves, so it sticks. John, I am very happy to see that you do have good health. Treat it as the gift it is, and make sure to enjoy it. Take your friends and family to a park and play frisbee with them. Fly kites. Climb mountains and enjoy the view. Go to the beach, and wade in the surf. Swim in the surf if you have skilled lifeguards patrolling. Hunt for shells. Get a stick and water shoes and explore the rockpools, gently poke things with the stick to see if they're an animal or a plant. And think of me when you do these things. Just for one or two tosses of the frisbee! What you can do to help people like me: Notice if someone's wheelchair is stuck in paving. Ask if they need the help, and get them free.* (IMPORTANT NOTE: always ask before moving a wheelchair.) Hold a door. Speak to the disabled person, too often someone will speak to the person helping them. ("Do you think she'd like this?" "Why don't you ask her!") * A real incident. The wheelchair was stuck in cobblestones on the edge of the road, and in the four or five minutes it took Bestie to reach her, noone - noone! - helped her. Bestie, of course, did. Got her past the cobbles and onto smooth pavement. One of the most memorable times someone helped us: Bestie and I were struggling to manage one person in a wheelchair (me), one pushing (Bestie), me loaded with carryon bags in my lap, and I was trying to manage a pair of suitcases in front of us, like pushing two prams at once. An apparently able-bodied person saw us, saw that we were aiming for a lift, took about two steps to his left and pushed the lift call button, and was on his way before we could even say a proper thank you. I've never forgotten that kindness.
  • Create New...