Parkinsons Disease

[lenquixote66]

Is anyone cruising with Advanced (Stage 4 or 5) Parkinsons Disease ?

[meh56]

My husband has had Parkinson's for over 10 years and most of the time is pretty stable. We had not traveled during covid but sailed on HAL Koningsdam for Thanksgiving 2022. He uses a walker and we alway get an accessible cabin. We flew southwest from Phoenix to San Diego and overnighted before

the cruise. Is there a specific question that I can answer for you?

[lenquixote66]

20 hours ago, meh56 said:

My husband has had Parkinson's for over 10 years and most of the time is pretty stable. We had not traveled during covid but sailed on HAL Koningsdam for Thanksgiving 2022. He uses a walker and we alway get an accessible cabin. We flew southwest from Phoenix to San Diego and overnighted before

the cruise. Is there a specific question that I can answer for you?

Stage 4 Parkinsons is a different category than Stage 1.

[meh56]

He does not have stage 1. He has had the disease for over 10 years and has many issues with the main one being bent spine syndrome. His Neurologist is a Parkinson's specialist as well as movement disorder specialist and does not believe in assigning stages. He has been thru some pretty tough times but

fights hard every day. He also has a pretty extensive list of drugs and last summer started a fairly new drug. We have been through some tough times but if our experience can help you just ask, we certainly understand where you are coming from.

 

[lenquixote66]

13 hours ago, meh56 said:

He does not have stage 1. He has had the disease for over 10 years and has many issues with the main one being bent spine syndrome. His Neurologist is a Parkinson's specialist as well as movement disorder specialist and does not believe in assigning stages. He has been thru some pretty tough times but

fights hard every day. He also has a pretty extensive list of drugs and last summer started a fairly new drug. We have been through some tough times but if our experience can help you just ask, we certainly understand where you are coming from.

 

Due to Parkinsons I do not have control of my bowels necessitating frequent trips to bathrooms.This is associated with Stage 4.