Rare rafinmd Posted July 14, 2014 #226 Share Posted July 14, 2014 Praying for a good result. Roy Link to comment Share on other sites More sharing options...
cruisenfreak Posted July 14, 2014 #227 Share Posted July 14, 2014 Prayers for you today! Mary Jane Link to comment Share on other sites More sharing options...
ncklhaus Posted July 14, 2014 #228 Share Posted July 14, 2014 Good luck, best wishes. And book the Breakaway for October 5th (in 12 weeks), I'd love to meet you. Link to comment Share on other sites More sharing options...
NayRN Posted July 14, 2014 #229 Share Posted July 14, 2014 Positive thoughts and good wishes!! Wish I could be there with you to demand answers....and give you a hug! Link to comment Share on other sites More sharing options...
kandpsmom Posted July 14, 2014 #230 Share Posted July 14, 2014 Just started reading your posts. Sending positive thoughts and well wishes your way today. Link to comment Share on other sites More sharing options...
happy cruzin Posted July 14, 2014 #231 Share Posted July 14, 2014 *fingers crossed* Hoping for GREAT news! :D Link to comment Share on other sites More sharing options...
peg013 Posted July 14, 2014 #232 Share Posted July 14, 2014 *fingers crossed* Hoping for GREAT news! :D Ditto! :) Link to comment Share on other sites More sharing options...
acruisingpeach23 Posted July 14, 2014 Author #233 Share Posted July 14, 2014 Thank you everyone :) So I sorta got an answer. My Pulmonologist said my lungs are perfect. No nodules and my breathing capacity is at 100%. So he isn't even sure what the surgeon saw that would have been a cause for concern to begin with. But.... The results from the CT scan were that I have two abnormally large lymph nodes in my mediastinum. Could be nothing, could be an infection, could be lung cancer, or lymphoma. I am right back to where I started. Except now I know (as of today) that my lungs are perfect. The doctor said my heart rate was over 100 due to me panicking so he ordered an emergency PET scan for me. I am going this Wednesday instead of waiting until the 25th. I am a little annoyed that the surgeon didn't tell me that it wasn't my lungs and that it is my lymph nodes. I wouldn't have been mad if he told me he made a mistake about the lung nodules but the fact that he ordered a PET scan because of my lymph nodes and failed to tell me that makes me a little annoyed. I kinda figured that something else was going on when the surgeon told me I needed a PET scan. Good news: my lungs are ok, I have a somewhat better understanding of what's going on, my pet scan was pushed up, and I like this new doctor. Oh and he also showed me my xrays. Bad news: I still do not know if I am healthy or unhealthy or if I need a biopsy. The biopsy sounds really scary. Because it's the mediastinum, (which by the way im not a genius and learned today that the mediastinum is located near your heart...I think anyway), and therefore would require an incision at the base of your neck. Ughh too many anxious thoughts running through my mind. He told me to un- pause my life but I can't do that..... I will know *hopefully* weds what the pet results are. Until then please keep those well wishes coming. :) Sent from my SCH-I545 using Forums mobile app Link to comment Share on other sites More sharing options...
happy cruzin Posted July 14, 2014 #234 Share Posted July 14, 2014 Thank you everyone :) So I sorta got an answer. My Pulmonologist said my lungs are perfect. No nodules and my breathing capacity is at 100%. So he isn't even sure what the surgeon saw that would have been a cause for concern to begin with. But.... The results from the CT scan were that I have two abnormally large lymph nodes in my mediastinum. Could be nothing, could be an infection, could be lung cancer, or lymphoma. I am right back to where I started. Except now I know (as of today) that my lungs are perfect. The doctor said my heart rate was over 100 due to me panicking so he ordered an emergency PET scan for me. I am going this Wednesday instead of waiting until the 25th. I am a little annoyed that the surgeon didn't tell me that it wasn't my lungs and that it is my lymph nodes. I wouldn't have been mad if he told me he made a mistake about the lung nodules but the fact that he ordered a PET scan because of my lymph nodes and failed to tell me that makes me a little annoyed. I kinda figured that something else was going on when the surgeon told me I needed a PET scan. Good news: my lungs are ok, I have a somewhat better understanding of what's going on, my pet scan was pushed up, and I like this new doctor. Oh and he also showed me my xrays. Bad news: I still do not know if I am healthy or unhealthy or if I need a biopsy. The biopsy sounds really scary. Because it's the mediastinum, (which by the way im not a genius and learned today that the mediastinum is located near your heart...I think anyway), and therefore would require an incision at the base of your neck. Ughh too many anxious thoughts running through my mind. He told me to un- pause my life but I can't do that..... I will know *hopefully* weds what the pet results are. Until then please keep those well wishes coming. :) Sent from my SCH-I545 using Forums mobile app Wow....hang in there! Medicine - unfortunately - rarely moves quickly. :o Link to comment Share on other sites More sharing options...
cruisenfreak Posted July 14, 2014 #235 Share Posted July 14, 2014 Continued caring thoughts, positive wishes and prayers. Mary Jane Link to comment Share on other sites More sharing options...
Rare rafinmd Posted July 15, 2014 #236 Share Posted July 15, 2014 Keeping the positive thoughts coming. Hang in there Roy Link to comment Share on other sites More sharing options...
peg013 Posted July 15, 2014 #237 Share Posted July 15, 2014 Praying for a good outcome on your PET scan. I'm glad you finally got some answers, even if there are more questions. Fingers crossed that it is an infection and you don't need a biopsy. :) Link to comment Share on other sites More sharing options...
CasinoCruzGirl Posted July 15, 2014 #238 Share Posted July 15, 2014 (edited) Thank you everyone :) So I sorta got an answer. My Pulmonologist said my lungs are perfect. No nodules and my breathing capacity is at 100%. So he isn't even sure what the surgeon saw that would have been a cause for concern to begin with. But.... The results from the CT scan were that I have two abnormally large lymph nodes in my mediastinum. Could be nothing, could be an infection, could be lung cancer, or lymphoma. I am right back to where I started. Except now I know (as of today) that my lungs are perfect. The doctor said my heart rate was over 100 due to me panicking so he ordered an emergency PET scan for me. I am going this Wednesday instead of waiting until the 25th. I am a little annoyed that the surgeon didn't tell me that it wasn't my lungs and that it is my lymph nodes. I wouldn't have been mad if he told me he made a mistake about the lung nodules but the fact that he ordered a PET scan because of my lymph nodes and failed to tell me that makes me a little annoyed. I kinda figured that something else was going on when the surgeon told me I needed a PET scan. Good news: my lungs are ok, I have a somewhat better understanding of what's going on, my pet scan was pushed up, and I like this new doctor. Oh and he also showed me my xrays. Bad news: I still do not know if I am healthy or unhealthy or if I need a biopsy. The biopsy sounds really scary. Because it's the mediastinum, (which by the way im not a genius and learned today that the mediastinum is located near your heart...I think anyway), and therefore would require an incision at the base of your neck. Ughh too many anxious thoughts running through my mind. He told me to un- pause my life but I can't do that..... I will know *hopefully* weds what the pet results are. Until then please keep those well wishes coming. :) Sent from my SCH-I545 using Forums mobile app Your going to be PERFECTLY fine I know it. And stay off google. Edited July 15, 2014 by GeriC Link to comment Share on other sites More sharing options...
wavesoffun Posted July 15, 2014 #239 Share Posted July 15, 2014 Prayers and good thoughts coming your way. Sent from my GT-P5210 using Forums mobile app Link to comment Share on other sites More sharing options...
PorkChopKid Posted July 15, 2014 #240 Share Posted July 15, 2014 Thank you everyone :) So I sorta got an answer....... Good news: my lungs are ok, I have a somewhat better understanding of what's going on, my pet scan was pushed up, and I like this new doctor. Oh and he also showed me my xrays. Bad news: I still do not know if I am healthy or unhealthy or if I need a biopsy. The biopsy sounds really scary. Because it's the mediastinum, (which by the way im not a genius and learned today that the mediastinum is located near your heart...I think anyway), and therefore would require an incision at the base of your neck. Ughh too many anxious thoughts running through my mind. Until then please keep those well wishes coming. :) You can count on the well wishes..... Following your postings, hoping for the best, and sending well wishes your way.... hang in there. Link to comment Share on other sites More sharing options...
NayRN Posted July 15, 2014 #241 Share Posted July 15, 2014 Your going to be PERFECTLY fine I know it. And stay off google. Best advice....ever! I know you're frustrated...I know you're scared....I know you have family, friends and us strangers praying for you! But please stay off the internet - it has information that simply isn't true and will scare you even more. :eek: Continued prayers and good thoughts. Thanks for keeping us updated! :) Link to comment Share on other sites More sharing options...
ncklhaus Posted July 15, 2014 #242 Share Posted July 15, 2014 Just to put your mind at ease, but the Gall Bladder issue you had could be what is causing the inflammation in the lymph nodes. Lymph nodes filter out the bad stuff and with chronic gall stones they could be permanently swollen. I know from experience. I had chronic tonsillitis with strep throat (13 times in 2 years) when I was 30. Since then, I have 2 swollen lymph nodes I'm my neck. Anytime I go to a doctor, I need to remind them because they start to get that concerned look.:D Link to comment Share on other sites More sharing options...
njmomof2 Posted July 15, 2014 #243 Share Posted July 15, 2014 I like the doctor's advise to unpause your life. Someone once told met that worrying is useless. If something is wrong, the worrying made it worse, and if nothing is wrong, we wasted our time worrying. In the end it does no good and only makes the situation unbearable. I would try to follow the advice to stay off the internet unless and until there is something to really research. Otherwise, you're subjected to tons of information about dozens of things that have nothing to do with you and send you into a whirling vortex of worry. You are going to be fine. Keep saying that. Try to get back to some sense of normal until your test Wednesday, when you will find out that you are perfectly healthy. Prayers for you from here too. Link to comment Share on other sites More sharing options...
cruisenfreak Posted July 15, 2014 #244 Share Posted July 15, 2014 I like the doctor's advise to unpause your life. Someone once told met that worrying is useless. If something is wrong, the worrying made it worse, and if nothing is wrong, we wasted our time worrying. In the end it does no good and only makes the situation unbearable. So hard to do when in the middle of a scary time, but such excellent advise! Link to comment Share on other sites More sharing options...
kirian Posted July 15, 2014 #245 Share Posted July 15, 2014 I like the doctor's advise to unpause your life. Someone once told met that worrying is useless. If something is wrong, the worrying made it worse, and if nothing is wrong, we wasted our time worrying. In the end it does no good and only makes the situation unbearable. I agree 100% (although I do realize that sometimes this is easier said than done)!!!! Years ago, I had a German language instructor who taught me this.... he said, "If worrying helps, than worry." In other words, worrying does us no good at all. I always try to remember this phrase when I am facing the unknown. Sending continued prayers and good vibes your way! Please keep us posted... we are all cheering for a positive outcome for you!!!! Melissa Link to comment Share on other sites More sharing options...
Stillfloatin' Posted July 15, 2014 #246 Share Posted July 15, 2014 You only have a couple of days to get through before you will have your PET results, so please allow yourself the luxury of that time spent worry and stress free. No amount of fretting is going to change the results, but it will rob you of today, which you cannot get back when it is gone. Take a deep breath and then look for the small moments that make life worthwhile. And know that you have many "strangers" sending prayers and best wishes your way. Link to comment Share on other sites More sharing options...
acruisingpeach23 Posted July 15, 2014 Author #247 Share Posted July 15, 2014 Well now I may not be able to get it done tomorrow. Since my insurance already gave authorization to one facility for the 25th they are refusing another one for tomorrow. The two doctors offices are trying to get this resolved but it's almost 3 so I'm pretty sure it's not happening. Sent from my SCH-I545 using Forums mobile app Link to comment Share on other sites More sharing options...
Rare rafinmd Posted July 15, 2014 #248 Share Posted July 15, 2014 Wishing you a couple of bulldogs in your Doctors' offices who can bring your insurance company to it's senses. Roy Link to comment Share on other sites More sharing options...
Medtech2 Posted July 15, 2014 #249 Share Posted July 15, 2014 Just to put your mind at ease, but the Gall Bladder issue you had could be what is causing the inflammation in the lymph nodes. Lymph nodes filter out the bad stuff and with chronic gall stones they could be permanently swollen. I know from experience. I had chronic tonsillitis with strep throat (13 times in 2 years) when I was 30. Since then, I have 2 swollen lymph nodes I'm my neck. Anytime I go to a doctor, I need to remind them because they start to get that concerned look.:D Yes, exactly! Same thing here--everyone always squeezes around my neck and asks me if anyone has ever mentioned I have enlarged nodes and thyroid. Yes, many times, tests all normal... OP please remember also that this might be something you have had all your life. "One man's normal is another man's abnormal" And who's to say what's normal? Positive thoughts :) Link to comment Share on other sites More sharing options...
AnyTime Cruiser Posted July 15, 2014 #250 Share Posted July 15, 2014 I've got my fingers crossed for you! Keep your head up and know that we're keeping you in our thoughts! Link to comment Share on other sites More sharing options...
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